Abstrato

Social portrait of families raising children with bronchopulmonary dysplasia.

Saltanat Sairankyzy1*, Roza Zhakanovna Seisebayeva2,3, Ardak Nurbakytovna Nurbakyt1, Ovsyannikov Dmitry Yurievich4, Tamara Khamitovna Khabieva5

Background: One of the serious complications of prematurity and respiratory distress syndrome of the newborn is bronchopulmonary dysplasia. Its frequency is growing all over the world, including Kazakhstan. The role of the family is important for the successful rehabilitation of children with severe bronchopulmonary disease. This study was conducted to study the social characteristics of families raising children with bronchopulmonary dysplasia living in the city of Almaty. Methods: Using a specially developed questionnaire, 34 parents with children suffering from bronchopulmonary dysplasia or with a history of bronchopulmonary dysplasiaand 64 parents of children without bronchopulmonary dysplasia and no history of bronchopulmonary dysplasiawere interviewed. Results: Families raising a child with bronchopulmonary dysplasia more often had two or three children (p=0.011); among them, other children with disabilities were found three times more often than in families with a child without the disease. Parents of children with bronchopulmonary dysplasia were statistically significantly older. Despite the education of both parents, many mothers (64.7%) turned out to be house wives; in addition, only 29.4% of mothers worked in their specialty after the birth of an ill child. Almost half of the fathers (47.1%) were workers and unemployed fathers were found only in these families. These families had bigger numbers of smoking fathers and smoking mothers were found to only in them 0.8.8% of children with bronchopulmonary dysplasia lived in unsatisfactory conditions and 17.6% of families only had enough money for food. In many families, after the birth of this child, the financial situation worsened. In addition, the parents of these children indicated the child's illness as the main reason for the bad relationships in the family. Conclusion: According to the results of this study, the social portrait of families with a child with bronchopulmonary dysplasia living in Almaty turned out to be low. These families require support from the state.